Thursday, May 3, 2012
G Tube?... (5/2)
We've reached a crossroads of sorts. We had a meeting with a surgeon today about a possible G-Tube and Fundo surgery. The G-tube is a tube that would be inserted in Thatcher's stomach directly into his stomach. This would replace his feeding tube that goes in his mouth, down his esophagus and into his stomach. The Fundo part of the surgery is to help his reflux which we've seen, and has been confirmed through tests. The Fundo is basically a string that ties around his esophagus at the stomach to basically stop the reflux from happening. The surgeon came in talking about having the surgery this friday and had papers ready to sign and everything... at this point we are not ready to commit to that, and we seem to be like a wave tossed back and forth by the wind because we are able to convince ourselves either way of whether to do the surgery or not. On the one hand we have seen a correlation between his reflux and his blue spells, he typically has more spells while he is eating. The tests confirmed that he refluxes almost immediately when feeding, and when he was not eating before the bronch procedure he did not have a single episode. On the other hand, the surgery poses huge risks, how much will this really help him? His issue of his airway will still remain which is really the more severe issue in terms of his blue spells. We are doing our best to seek the Lord's will to ensure that we remian in step with Him and we act according to His will for Thatcher, but we need discernment and wisdom as this is a huge decision for Thatcher. This surgery would require for Thatcher to be intubated again, and would require even more anesthetics and pain meds than the Bronch procedure. It is a huge concern of how he will handle coming out of the more invasive, painful procudure. How he will handle being intubated again (this is a HUGE concern), and how he will handle the anethesia. He recovers from things MUCH more slowly than the typical infant so the fear is that he may not regain his respiratory drive. Please lift Thatcher up in prayer for continued healing, and for God to be glorified in and through Thatcher's life. Also, please pray for discernment and wisdom, and a peace about any decision in this regard, confidence that we are acting within the Lord's will. Please pray that God would be an ever present pillar of smoke or pillar of fire so that we can know exactly where to step next, a visible direction of where to go. Thank you all for praying with us on this journey. To God be the glory.