Okay.. Well it's been a really rough one and a half days. While trying to regulate Thatcher's seizure meds, his level went too low and he started seizing pretty continuously starting Wednesday night, all day yesterday and last night. During these seizures thatcher will stop breathing altogether which causes even more distress on his body. So last night he got put back on Cpap to try and at least keep pressurized oxygen flowing through him and keep his airways from clamping down. This morning his medicine level was even lower but the Cpap has seemed to help with his breathing a little. He still stops breathing during some of his seizures and his oxygenation level with drop fast, but it doesn't seem to be as frequent. He also got another "loading" dose of phenibarb to try and get the level back up do his seizures won't be as traumatic (no it doesn't stop them but hopefully help the physical manifestation of some of them)after a dose of adivan, another loading dose of keppra and upping his matanience dose of keppra to the maximum allowed for pediatrics. Doctors are now looking at his lung function to see if his aveoli are perhaps collapsing and we should be getting results back from hearing and vision tests to see how aggressive they can/need to be with his seizure meds.
Their thinking is that some of the levels we might think about getting to or other meds we might add have a toxic effect on hearing and seeing abilities so if he doesn't have these abilities then they won't worry about those "warnings". This of course terrifies us! Needless to say there are a lot of overwhelming things going on. We just want Thatcher to breathe, be comfortable, and not seize... He needs rest! Satan is definitely on the attack telling Thatcher, he is weak, allowing us to feel alone, abandoned. But we remember where God has brought us from, we know we are not alone, and we trust in what He is doing. Please continue to beg for God to show His glory in this oppressive place, to lay His healing hands on Thatcher and massage life into his tiny body, to be Thatcher's breath of life!!
Lord, we need you here, we are desparate for your presence!
Sent from my iPhone
DEAR FAMILY. OUR PRAYER IS YOU WILL FEEL GOD'S PRESENCE AND COMFORT. MANY MANY PRAYERS ARE HEADED UP TO THE EARS OF GOD FOR THATCHER!!!
ReplyDeleteI know it is a daily thing to put your child in the hands of God. Fear is not from God, you are right it is a trick from the devil. We are not going to let him have that over you all. We are praying God will give Thatcher the breath of Life, that the two of you will continue to have a Peace that surpasses all understanding, and that you will continue to feel Gods loving arms around you and around precious Thatcher. He knows you and He knows Thatcher. God has plans for you; plans for a 'Future and a Hope'. May God Bless you & your sweet family!-K Whitaker
ReplyDeleteCindy Albers
ReplyDeleteRocky...I am Ned Arps' daughter.
Singing a hymn you know well as a heartfelt prayer for your family...
"Oh soul, are you weary and troubled? No light in the darkness you see? There's light for a look at the Savior, And life more abundant and free! Turn your eyes upon Jesus, Look full in His wonderful face, and the things of earth will grow strangely dim, In the light of His glory and grace."
My heart and soul cry out to God for you and for Thatcher. This is truly a tough valley to climb out and a very tall mountain upon which to view the trials below. But victory is His and His glory is shining continously on you and on Thatcher. Your faith reflects His promises.
ReplyDeleteBe strong and fearless, God is doing great and wonderfull things through all of you. Praises for this opportunity to pray for you and for all the good that will result in your steadfast faith.
We are all still here praying so hard for baby Thatcher and his Mommy and Daddy. May God bless all of you.
ReplyDeleteYou are not alone! There are many, many people you don't even know praying for you! May God fill your hearts with His presence and watch over baby Thatcher.
ReplyDeleteI have been praying for Baby Thatcher since day one! I am still praying :)
ReplyDeleteSuffer the Little Children to Come Unto Me
ReplyDelete"And they brought young children to Him, that He should touch them: and His disciples rebuked those that brought them. But when Jesus saw it, He was much displeased, and said unto them, Suffer the little children to come unto Me, and forbid them not: for of such is the kingdom of God"
(Mark 10:13-14). It is God's wish that Thatcher be with him. May God bless you both.
Dear Father, our Healer, you are more than enough. Go to Thatcher now, in the strong name of Jesus. Breathe your strength into his precious little body and give him rest. Be with all the family through all this Lord, and wrap your arms around each one of them, letting them feel your love and all our love for them. We believe you Lord, you are more than able.
ReplyDeleteThe Children of Urbanna Methodist Church continue to pray for Thatcher as do all the teaching staff. May the peace that passes understanding fill your hearts through all of these trying times. Psalm 91:11, And He will give his ANGELS charge over thee to keep thee in all thy ways.
ReplyDeleteSandra Davis Dize
Continuing to pray. With God everything is possible. Yall are always on my mind and in my prayers.
ReplyDeleteI am praying for all 3 of you. I know you feel alone in that place and that the oppression is almost palpable. I'm praying now that the darkness would flee and God's presence and light would engulf you all. I'm praying that no matter how you feel, the Truth would eclipse those feelings moment by moment. And I'm asking that no matter what test results reveal, no matter what a doctor does or does not say, no matter what happens next, God's very present peace would sustain and calm you. You are in the hands of God today...stand on that.
ReplyDeleteDearest Thatcher Caleb,
ReplyDeleteI continue to praise Him for your miracle of life and praying for amazing strength thru Christ for your mommie and daddy. Your Auntie Robin rocked my favorite song Saturday night at church(as she always does) and I cannot wait and pray for the day you can hear and see her sing His praises and of His love!
You are your parents biggest love, first tear drops and last breath of air each day and night. I pray you feel His strength and love every second and that you face Satan's evil darkness with joy and happiness for every day you are part of this earthly life!
Love from the Kronjaeger's
Praying continually for precious Thatcher and the two of you. I pray that your strength be restored and that Thatcher's breathing and levels not just stabilize but that they astound doctors and nurses with overwhelming normalcy! Your child is a miracle and a child of our Living God and He is to be praised in and through all things! Our most gracious Heavenly Father - comfort and breathe Your peace over this sweet family! Wrap this sweet baby in Your healing arms and shield him from the enemy. Father please give Eric and Whitney strength that only You can provide. Father give them boldness to stand up for their child. Father be with the doctors and nurses who care for Thatcher. Allow them to be extensions of Your hands and allow them to do as You would have them do in the treatment of this precious child. Father, we continue to give you praise and we ask that You continue to be the sustainer of this family. We claim victory over all situations in Your precious Son's name. Amen and Amen.
ReplyDeleteI'm not very good with words, but you all stay on my mind, so today as it rains here in Oklahoma prayers continue to be said. You all are loved more than you know. Stay strong in the Lord for He knows and shows us the way.
ReplyDelete