Tuesday, April 24, 2012

Bronchoscopy... (4/24)

Bronchoscopy (Bronco- scope - ee) - this is how it is improperly pronounced, in case you were wondering how not to say a word, we are happy to be of service.

Tomorrow morning we will be undergoing our first operation.  A bronchoscopy, basically they will put Thatcher under, open up his mouth real wide and stick a rigid camera down his throat.  They will take video and pictures of whatever it is that is going on in his throat and we will go from there.  They are doing his pre-op baths tonight which apparently use some special anti-microbal soap, and he will be dressed in the hospitals finest linens.  Then at 7am we will be set up with the transport team and heading to the OR.  Once there, ENT (Ear, nose, throat) will do another Flex Scope before he is put under just to get another look at his airway while he is still alert and awake.  Then the anesthesia folks will do their job and begin to administer their drugs and make sure that he stays sedated correctly and also give him some pain meds during the procedure.  The ENT doctors will use some sort of contraption that will keep his airway open.  They will put a rigid scope (which also provides some breathing support) down his throat and will push beyond his vocal folds to see his entire airway to make sure we have a full picture of his airway and that they can accurately diagnose the issue at hand.  Beyond that, we don't know what to expect.  They have the approval to go ahead and do any minor operations while they have him sedated if they see something that can be worked on, but if they believe a trach is neccessary, then they will pull out and consult with us before we go any further.  The concerns that we have and have been brought up are that this is the first time that he will have anesthesia administered, with his neurological state (now we sound like the doctors), will he be able to pull himself out of the anesthesia efficiently, effectively, correctly, whatever term you want to use so that there is no damage to his brain or other organs.  Beyond this the concern that he will maintain his drive to breath following anesthesia, or if he becomes intubated again, that his drive will return.  Any sort of physical damage from the procedure meaning damage to his airway from jamming a rigid camera down a sensitive and swollen airway, scrapes, further swelling, scar tissue, things of that nature are certainly a concern.  This is his first true operation, and getting a prick and bathtime are incredibly tramatic for him, so just that he won't go into shock, and that his body won't go into overdrive or shutdown.

While these are several of the concerns, and legitimate apparently, according to the doctors, we believe that the journey to this point has been orchestrated by God.  Every detail of every day, God is in control, and God has orchestrated.  Looking back to the first week of life, we were told he would never breathe off a ventilator, Thatcher and God had a different plan.  Following that we've been told that he has no organized brain activity, but we watch him work to position his head so that he can breath better, he still has incredible prophetic and comedic timing with his grunts and noises, and he is responsive, with his grasps, his kicks, ect.  We've been discouraged from pursuing treatment of his airway because it is all central.  Well, we had a sleep study that states otherwise, and we have several weeks of watching our baby struggle that tell us otherwise as well as a preliminary scope that tell us otherwise.  God orchestrated us having to have a second sleep study to show the numbers that it did, God orchestrated every moment up to this point where the doctors are now pushing to pursue treatment of his airway.  God is in control, and we will trust Him, and we will praise Him for how far we have come already, and for the great things that He has done in and through Thatcher.  We have a peace about where we stand today, and we have a peace about the bronchoscopy tomorrow, we will rely on the truth that our God is in control, and that our God is for Thatcher.  One of my favorite lines from a song that's been in my head today is, "You are God, and you don't miss a thing".  So true, you know Thatcher inside and out, and you are God, you don't miss a thing, you orchestrated every detail thus far, why would we ever second guess that you won't continue to do so.  We love you, Lord, that you are the same yesterday, today, and forever.  You don't miss a thing.

Join us in praying for Thatcher as he undergoes his first operation, that God would guide the doctors hands, that what is intended to be seen is found and seen, that Thatcher handles the stress of the operation by the strength of God, and that God moves, and shows up in a big way tomorrow morning.  Continue to pray for healing, for the miraculous and the spectacular, that what occurs and unfolds can only be attributed to the glory of our God.  Our great God.  Our victorious healer.  Our Lord and Savior.  To Him be the glory, the honor, the praise.

15 comments:

  1. Prayers coming from New Hampshire!

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  2. Prayer warriors in Alabama are praying for you all.

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  3. The Almond FamilyApril 25, 2012 at 5:43 AM

    Praying!

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  4. Praying for your sweet Thatcher in Michigan!

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  5. Hey hun, a year ago my mother was intubated, and a trach was necessary. It feels very helpless if you are alone but as we all know God is always there! after six months on she is fully recovered because my family gathered in prayer and agreed with the Lord that in the flesh she may "seem" unwell but in the spirit she was already healed. N ok doctor agreed but they are just man, and now they can't explain her recovery. Your baby is blessed and favored and will not undergo anything he cannot handle, he is perfect, loved, strong, and already a fighter. You are doing all the right things so you keep snuggling him with love and reminding him God is in control. I love you all sisters and brothers in Christ!!

    Love,
    Paris

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  6. While I know this is a heavy subject matter , I have to tell you I literally laughed out loud and spit coffee onto my computer keyboard when I read the opening to your blog post! I love that in the midst of all of the heavy, weighty conversations you guys have on a daily basis, your sense of humor is intact!

    Praying for sweet Thatcher today! I remember my first child's first surgery. It was incredibly minor, but I still cried when they wheeled him off to surgery. Praying for Peace over your hearts and minds today.

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  7. We're praying in Virginia!

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  8. Prayers going up for Baby Thatcher Caleb, his Mommy, Daddy, Granparents, and extended family from Southeast Texas.

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  9. STILL PRAYING PRAYING PRAYING!

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  10. May the peace that only God can bring surround you tommorrow. There is a beautiful mural of Mary holding her baby in the parking garage at Texas Children's-for me that picture is a gentle reminder of the tenderness that every parent who has ever walked through hospital doors needs. May that tenderness be there for each of you tomorrow. Love you guys! Leigh Anne

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  11. Getting close to time for Thatcher's surgery. May God's hand be on him. May God's wisdom and healing be with the doctors. And me you both and your families all be wrapped in God's arms. I know how difficult it is to hand your child over for procedures, no matter what it is. Just remember God's plan and take comfort in knowing God is right there with you!!
    Big hugs all around and will be keeping y'all in my thoughts. Best wishes to you!!

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  12. You are where we were 8 years ago. We had our baby baptized and then watched as he was wheeled into surgery with the odds for survival at 20%. As we kissed our baby on the gurnee, one of the sweet nurses gave us a pocket cross to hold onto. We felt God's peace and comfort throughout the 3 hour surgery. Our "baby" is now 8 and has such a zest for life. He is a fighter to this day, and will try anything other kids his age do. He has minor limitations, and we can't imagine life without him. We will be praying for guidance for the doctors, safety for Thatcher, and peace and assurance for you and your family. God has shown you that He is in control - rest in that knowledge. He is not going to leave you know. We await the good news!

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  13. We are praying for you and your entire precious family....your faith is amazing and we know that He will equip you fully for whatever awaits you on your journey.

    Love,
    Tim, Kathy, Cameron & Lauren Carlisle

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  14. Eric,
    I have been keeping up with your blog, checking it every few days. Your strength and passion for Christ is so amazing. You both have inspired me and pushed me further down my path in seeking a stronger relationship with Our Holy Father. There are quite a few of us here at EBS that are praying for you and read your blog regularly. Even though you are not here with us, know you are in our hearts and prayers daily. God would not have given a challenge such as this to a set of parents He knew would not stand firm in their faith with each new step. He knows how strong you are!! Sweet kisses to blessed Thatcher and know you all are loved.


    Linda Thompson

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