Not the day we expected... (4/4)

We prayed that God's will would be clear today, and that He would orchestrate the events of today.  Well, apparently it was not His will to have Thatcher try nasal cannula for a second time today, that day appears to be tomorrow at this point.  In addition, it was not His will that we speak with neurology, that will be happening at 6am tomorrow morning.  This could feel like a very frustrating set back, and to be honest this afternoon had some ups and downs, but if we truly believe what we pray then there is a reason why neither one of those things happened today, and we will trust that it will be glorifying to God.  Had we started nasal cannula yesterday morning (Monday morning) which was the original plan over the weekend, Thatcher would have had fail number 2 put on his record, due to his phenobarb level dropping too low again.  In hind sight, we can see why God did not allow him to begin nasal cannula on Monday, so we are trusting in Him as to why the expected events of today did not happen.

As we mentioned just above, Thatcher's phenobarb levels dropped again, they were at a 44, which the doctor was OK with initially, but just before he was to get put onto nasal cannula, Thatcher showed us that this level was not high enough to control his seizures.  He seized pretty consistently for a couple of hours, which as odd as it may seem, we believe was orchestrated by God.  Here was Whit's post on facebook:

Soo even though thatchers phenibarb level dropped down to 44 and he is having more clinical (noticeable to the eye) seizures the dr. has decided to try thatcher on nasal cannula again because she doesn't think the seizures are as severe as last wk and won't interfere with his breathing (even though she wasn't here last wk and didn't see the seizures) as you can imagine I am quite anxious, just imagining our nightmare of last week happening again. Please pray for God's protection for our sweet baby and that God orchestrates the events of today so that they are all in His will and not our own (because I'm ready to climb into that crib, cower over my child and bark at the doctors to leave him alone)

As Whit walked back into the room, Thatcher was seizing and had just gone apnic, he had one of his blue spells.  Because of this, we were able to speak to the doctor about postponing the nasal cannula transition.  The rest of the afternoon Thatcher rested, the seizures are still present, and his maintenance dose has been increased, but Thatcher has been much more relaxed and at peace this afternoon and evening.  Because the seizures are still present, we may have to get a loading dose tonight, but regardless the Dr. wants to try nasal cannula tomorrow.  Honestly, we don't know what to think, or what to expect.  They said they wanted to make sure that Thatcher had a good steady level in the 50's before they tried nasal cannula again, and we are sitting at 44 today, and don't expect it to get into the 50's before tomorrow, and we haven't had a steady level yet.  With that said, we continue to pray that God would continue to orchestrate the events of each day so that it is only by His will that each day unfolds.  It was obvious it wasn't supposed to happen today, so it didn't.  So while we can't say with any certainty that Thatcher will be trying nasal cannula tomorrow, we can say in absolute truth that God is in control, and He will continue to be.

Our prayers have not changed.  We are praying for the seizures to stop completely, and for Thatcher to have a strong open airway.  We continue to pray for absolute and complete healing. 

I am the Lord, the God of all mankind.  Is anything too hard for Me?

- Jeremiah 32:27

This is the God we serve, and we believe in.  He is able to stop seizures that medicines can't control, and to generate brain tissue where doctors say it's non-existent.  We will wait, faithfully, with hopeful anticipation to see how God continues to move.  To Him be the glory.