So we have good news and bad news. We'll get the bad news out of the way first. There has been no further developments with the sleep study results... yet. The ENT doctors have been made aware and we expect to see them Monday or Tuesday. They will help determine the course of action that we take to help treat Thatcher's obstruction and also what exactly that obstruction is. Not sure why I said that was bad news, it's really not bad news at all, and the bright side of the bad news is that Dr. C (our new doctor for the time being) did not chalk up the sleep study results to simply Neuro issues, huge answered prayer!! What we were able to gather from rounds was that she actually wanted to take a look at the airway issue apart from the neuro issues at least initially, which is so amazing as it has been kind of the routine for a doctor to come in make an assessment and once they see his neurological issues, that assessment gets tossed and it gets blamed on his brain. Well, we are so thrilled that she wants to take this approach. So I guess that was some pretty good bad news, huh?
So here is the good news, today Thatcher started working out. He did his first push up today while mom was holding him. He has been moving his head around here and there trying to position it better to breath, or when he is irritated, or randomly really. But tonight, he just wanted to show off how strong he was, so he just began by lifting his head up, and then he pushed up with his forearms and hands and almost his entire torso was lifted up and he was looking mom right in the face! He held this for a couple of seconds. It was so amazing! Thank you, God for providing strength to your child! And showing us, yet again, that you are in control, and that you are working in Thatcher.
Outside of this, we started taking some steroids today (there is no corellation to the pushups... we don't think...) to help get the swelling in his throat down a little bit more quickly. His throat was irritated even more than usual after we switched out his OG tube yesterday (his feeding tube, it had to be done...) He has only been on the steroids for about 10 hours now, and there has already been a decrease in the number of striders he is experiencing, and his breathing seems to be easier now. Again, thank you God for this grace.
Thank you everyone for praying with us for healing for Thatcher, and for praying with us throughout our journey so far. We are so encouraged by the prayers, and support, and honestly we are most encouraged by what God allows us to see day in and day out, the little changes, the subtle developments in Thatcher's abilities, or even his personality, his faces, and timing of noises, his reactions, or how God is teaching us, and drawing us nearer to Him. Praise God for who He is, and for what He is doing. Our God is victorious. Thank you, Lord! To You be all the praise, and all the honor, and all the glory forever. -amen.
That is amazing. We continute to pray for strength, purposed breathing, and healing!
ReplyDeleteWhat a testimony!
YAY!!! Loved this update. The verse this morning in our preschool Sunday school is "Be STRONG and courageous, for the Lord your God will be with you wherever you go" - Joshua 1:9 Lord Jesus, we praise You for making Thatcher STRONG every day - thank You for displaying Your own STRENGTH in his little body - we praise You and give You all the glory - You, oh Lord, are our STRENGTH.
ReplyDeleteyaya!!!! so glad to hear that! Continuously praying for you!!!
ReplyDeleteContinuing to pray and thank God for Thatcher's progress! What an incredible update! God is Good all the time!
ReplyDeleteHebrews 4:16
ReplyDelete"Let us come to the throne of grace with confidence. There we will find grace to help us in our time of need."
How wonderful it is to see God working in Thatcher Caleb's life! It really gives meaning to the song that says, "You have new mercies for me everyday. Your love never fails!"
PRAISE GOD!!! Continuing to pray!
ReplyDeleteThank God for a little thing like a push up. Thank you for the update and the sharing. We continue to pray for your family.
ReplyDeleteContinued prayers for your sweet baby boy as well as prayers for you both. Your strength, faith and courage are amazing. I think about you all everyday. God bless your family!
ReplyDeletePraise the Lord! We are rejoicing with this news and will continue to pray for your sweet boy and family!
ReplyDeleteAmazing! We are still praying for you! So glad you had a better day! :)
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